This is the letter I wrote to the Cleveland Clinic, for my week long appointment, in which they gave me a final diagnosis of IBS-D and GERD.
This should pretty much show you that I was just like each and everyone of you, suffering from many of the same symptoms you do. Trying all the medications in the world to eradicate my problem with no luck.
As you can see in the link above, it wasn't until I saw Dr. Cahill in NYC that I was diagnosed with E. Histolytica and eradicated the bug completely.
One thing to note is that my overactive thyroid was in response to the underlying infection in my body - EH. I've never had thyroid problems before and the only reason the thyroid was so out of whack was b/c it was the body's natural response for having to fight off an on-going, invasive, infection for so long.
For your convenience, I've also listed an update on each symptom, in CAPS, in the note below, since I've eradicated the bug and have had time to recover.
Your welcome lineup :)
Any questions, please ask.
Dear National Consult Team –
My name is XXXX XXXXX and I would like to schedule a consult with your
world-class physicians at the Cleveland Clinic.
A quick background on the reason for making this appointment – I lived in
India for 4 months about 3 years ago and have been back about 6-7 times
since. I also travel frequently to
Russia and other emerging markets for business.
On my initial trip to India, I unknowingly drank the water and ate the
food. A year or so later, I remember
experiencing the signs of Giardia during that trip but was too naïve to do
anything about it. Once I got back to
London (where I was living at the time), I started to experience terrible sinus
issues and saw many ENT doctors to no avail.
It wasn’t until I moved to LA and saw my general doctor, an allergist
(numerous times) and eventually an ENT that I ended up getting sinus surgery on
a deviated septum. One week after the
surgery, the symptoms came back and neither the ENT nor allergist could explain
it. Finally, after speaking with some
relatives who are doctors, the suggestion of parasites came up.
A lot of my symptoms, which I’ll list a bit later, were very much in line
with those of parasitic infections. I
took two stool tests but neither came up with any parasites. I also tried many different medications,
which I’ll also list later, to no avail.
As I wasn’t making any progress, I scheduled an appointment with a very
well-known GI doctor in Beverly Hills, CA.
I saw Dr. XXX XXXXXX for about 6-8 months w/ no luck. Dr. XXXXX ran many different tests on me,
which will be listed below and tried new types of medications but we had no
luck. Seeing that I wasn’t making
progress with Dr. XXXXXX, I moved on to more of a homeopathic doctor who was
not only a homeopathic doctor but also studied traditional medicine and Chinese
medicine. We’ve tried various herbal
concussions and most recently an antibiotic followed by a very strong probiotic
and anti-fungal – which will be listed below.
The one thing the homeopathic doctor did help me discover is that my
Thyroid was extremely overactive. He
said my reverse T3 test was the highest he’s ever seen. Normal range for reverse T3 is 11-32. My result was 173. After taking thyroid meds for the past 6
weeks, it is still a bit high at 36, but definitely much more reasonable.
At this point, I’ve really come to a crossroads. I have not been able to be myself, a normal
healthy 27 year old boy, for the last 3 years.
Two nights ago, I had to go to the Emergency Room because the pain in my
intestines was so severe. The ER wasn’t
much help but it made me realize I need to figure this out once and for all and
therefore, the reason for scheduling the consultation at the Cleveland Clinic.
My symptoms have been pretty consistent over the past 3 years. In the beginning it was more sinus related issues
that I would notice (I refused to believe I had GI issues at that point) but as
I started taking various medications, the sinus issues started to dissipate and
the GI issues became a lot more evident.
My symptoms include:
Strong Constipation -- SOME CONSTIPATION STILL EXISTS BUT I BELIEVE IT JUST TAKES TIME FOR THE BODY TO GET BACK TO NORMAL
Diarrhea (not as frequent as constipation) -- GONE. STOOLS ARE NORMAL
Foul smelling Gas -- GONE
Stomach gurgling loud after lunch and before bed – which has diminished a bit w
the diet -- GONE
Pain below left rib cage (Spleen) -- GONE
Very tender pain below belly button -- GONE
Abdominal pain in middle upper abs -- GONE
Anal Itch -- GONE
Milk/Dairy Intolerance -- STILL HAVE NOT HAD MILK/DAIRY. PROB WILL WAIT ANOTHER 4-6 MONTHS
Fatigue -- GONE
On-going sinus issues / Pain under top of eyes / nostrils clogged -- GONE
Constant fluid in ears and post-nasal drip in throat -- STILL A LITTLE FLUID IN EARS EVERY SO OFTER
Major Weight Loss (176 lbs. to 147 lbs. in last 3 months) -- IT WAS MOSTLY MUSCLE LOSS. I'M GAINING IT BACK AT THE GYM SLOWLY BUT SURELY. UP TO 153.
Terrible right shoulder pain -- GONE
Lower back pain -- STILL THERE BUT MUCH BETTER THAN BEFORE. DR. CAHILL TOLD ME THIS WILL TAKE A WHILE TO GO AWAY.
Waking in Middle of Night w/ urge to urinate / Insomnia -- STILL HAPPENS. I BELIEVE THIS IS FROM THE IMPACT OF THE AMOEBA ON MY LIVER. I THINK A LIVER CLEANSE WILL HELP SORT THIS OUT BUT WAITING A FEW MONTHS TO DO SO.
Dry Mouth in evening -- GONE
Loss of hair (so says my
girlfriend) -- FULL HEAD OF HAIR :)
One note on the above: I had issues
in college with my spleen. I ended up
doing a PET scan which revealed my spleen was enlarged. There was never a remedy but I’m getting that
same pain again that I got in college.
As mentioned, the symptoms really
started after my first India trip but have gotten progressively worse over the
past 3 years.
Types of testing:
Various Stool Testing -- Traditional labs and Parasitology labs
EGD (w/ biopsy of small intestines)
Various Blood Testing
I can provide the results of the Colonoscopy/EGD and all the tests upon my visit. Essentially, the doctor said they found mucus
in my throat which suggests GERD and put me on Nexium (w/out success). They also found a mini ulcer in my stomach
which they removed. He said everything
else was normal. As previously
mentioned, the blood test from the homeopathic doctor showed hyperthyroidism.
I was due to have a video endoscopy
but my GI doctor didn’t believe it would reveal anything. The GI doctor also wanted me to have a
hydrogen breath test but instead, he had me try rifaximin to see if the
symptoms went away – which they did while I was on the medication but then
swiftly came back towards the end.
The only allergy found was an
allergy to histamines. Other than that,
no food or environmental allergies were found.
Here is a list of medications I
Triple Therapy for Blastocyst Hominis / D Fraglis which
consisted of Secnidazole, Dioloxanide Furoate, Bactrim DS and Doxycycline
and Iodoquinol together
liver, kidney and parasite cleanses
For the past 6 months, I’ve been
doing the Specific Carbohydrates Diet and once I met with the homeopathic
doctor, I made some tweaks to create a more alkaline diet to bring my body’s pH
to an optimal 7.4.
I stopped trying antibiotics a few
months back (they were taken over the course of the 3 years) because of the
further damage they were probably doing on my intestines. Since then, I’ve been doing more natural
stuff and probiotics.
My current medications include –
Thyroid grains concocted by homeopathic doctor
50 billion Custom Probiotics – Acidophilus and Bifidus
DGL Licorace before eating for GERD
Digestive Enzyme concocted by homeopathic doctor
I also have a shake each morning
consisting of banana, almond milk, psyllium husks, mixture of green vegetables
in powder form and ice to try and keep my bowels moving over the course of the
Ideally, I would like to schedule
my first appointment at the Cleveland Clinic anytime on Wednesday December 21st. I would then be available, in Cleveland, from
December 21st until January 2nd for further appointments
at the clinic. If need be, I could
extend my trip to January 5th but I must be back in LA no later than
the 5th as I have to visit Hong Kong and Moscow on business the
I believe the most appropriate
doctors would be a GI doctor, infectious disease (tropical medicine) doctor and
an internist – not necessarily in that order.
Please let me know if you have any
Thank you in advance for your help!