Tags : :
Hello, I'm new to the forum. I was diagnosed a month ago with SIBO, took Xifaxan without improvement, then pushed for O&P test which turned up Blastocystis and Endolimax infections two weeks ago. Doctor prescribed 3 days of Alinia (500 mg, 2x a day). From my reading here and elsewhere online, I see that that is likely nowhere near enough, yet she won't budge on her prescription. I can't seem to find a doctor who will approve a longer/higher dose treatment of Alinia despite that I have seen several posts online (with no details or follow-up) by people who have had success with their doctors treating them with it. I live in the NYC area and would love to know if anyone knows of a doctor (any type!) who is amenable to prescribing Alinia at higher/longer doses or even the Sydney triple therapy. I don't feel very comfortable with ordering drugs through Mexico and treating myself, but maybe that's what I'll have to do...? Please let me know if any of you have doctors you can recommend...I will travel!
Besides antibiotic treatment, I have been following a practically zero-carb diet for months and have only gotten worse, with daily, severe abdominal pain and bizarre bowel movements. There is no safe food. I just started eating small amounts of carbs again last night because I was in so much pain and I just don't see the point of following the diet so strictly when I just keep getting worse. It seems like as soon as I put food in my body, no matter what it is, my intestines revolt. So discouraging.
What should I be doing in preparation for taking the antibiotics? Colon cleanse? Herbs? Lactoferrin/xylitol? Xylitol is strictly forbidden for SIBO sufferers. I am vitamin D deficient but when I tried to take 1000 mg of D3 2 weeks ago, I got horrible diarrhea. When I tried enteric peppermint/oregano, my abdominal pain worsened considerably to the point of me having to stop it. I feel like everything I try just makes things worse. I'm at the end of my rope, in agonizing pain nearly every day and desperately need to find a doctor who will work with me to get better. All the scientific/medical jargon on these sites is overwhelming for me... I need a protocol that makes sense and that I can implement safely.
I would appreciate any help or advice you might be able to offer.