I figure as a new member here I would give a quick synopsis
of my history as well as past and current symptoms.
I got sick in 2006 after a 2 month stay in Indonesia. I experienced extreme fatigue, explosive diarrhea,
heart palpitations and chest pain, flatulence and burping, brain fog, dizziness,
extreme anxiety attacks, rapid heart rate, tingling in hands and fingers and low back pain. After several O&P stool tests I was
diagnosed with Blastocystis and treated with a 7 day course of Flagyl.
Of course that only diminished but didn’t resolve my
symptoms. I was told that I was cured
and that my symptoms were now a result of developing post infectious IBS. Sound familiar to anyone?
I kept pressing doctors that I still had the bug and I was
given a standing order at the lab to do an O&P test any time I wanted. After several negative results I tested
positive once again for Blastocystis.
This time I was prescribed Flagyl and Yodoxin which really made me feel
better. In fact it cleared up all of my
But slowly over the course of several month my symptoms
returned although in a more subdued form.
In-between treatments I had at times been diagnosed with yeast and given
an oral anti-fungal medicine which did nothing for my symptoms.
Since then I have been treated empirically with a
combination of Tetracycline + Alinia + Septra, Rifaximin (2 separate times) and
more recently Doxycycline + Yodoxin (which made my stools return to normal for
a few months). After each treatment the symptoms slowly returned.
The Doxy+Yodoxin treatment
was just before I took a 3 month trip back to Indonesia where I felt good. Stools were near normal and I had tons of
energy and no heart palpitations.
since returning my symptoms have progressed.
The heart palpitations are the most concerning.
My current symptoms are:
- Mushy stools with occasional diarrhea (w/
undigested food particles) 2 to 3 a day
- Occasional fatigue coupled with brain fog
- Periods of vertigo
- Upper left epigastric pain (never had this
- Heart palpitations (almost daily now – had an
echocardiogram done which showed a health and strong heart)
- Weight loss (I’m 6’2” and have been as low as
- General feeling of not being well
- Itchy skin and anus
- Belching especially after meals
- Eating sugars and carbs increases symptoms
Saw a naturopath doctor who thought I may have SIBO. Took a hydrogen breath test that showed a predominance
of hydrogen producing bacteria. GI
doctor disagreed with the diagnosis but prescribed Rifaximin anyway which did
little to curb my symptoms.
Currently I am awaiting results of a full blood workup and
Two years ago I had a colonoscopy and endoscopy which only found
evidence of GERD (Barrett’s esophagus) and I was told to stay on PPI’s
forever. I’ve since stopped taking PPI’s
as I don’t believe they are safe for long term use and fully believe that my
GERD (which has no symptoms) is caused by whatever bug I might have. I’m taking d-limonene instead.
Having just returned from 3 months in Indonesia I have not
ruled out the possibility that I have picked up something new to compliment my
I saw a GI doctor a few weeks ago after waiting nearly a
month and a half to get in who impatiently listened to my symptoms and concerns
and then said it sounded like IBS.
Anyway, my story seems so similar to many of the stories
here in terms of treatment approaches taken, typical medical responses and
I’m really curious regarding all the diagnosis of e.
histolytica. It almost seems like it is
a common commensal with a blastocystis diagnosis. I have had a blood test for it done which
came back negative but I wonder how accurate it really is?
Lots of great information on this forum and I wish everyone
the best with your battles to get well.