I'm glad to have found this forum. With all the contradictory information out there about blastocystis, this is very welcome.
My story: In April, 2009 I had a colon resection to remove cancerous polyps on the wall of my intestine. Post-surgery, I began to slowly recover and feel well again, with little stomach upset. Then, 8 months later in Dec., 2009, I began to experience daily nausea and stomach pains and noticed that I was starting to lose weight for no obvious reason. I was referred by my doctor to a gastroenterologist who performed an endoscopy, followed a few weeks later by a colonoscopy. Nothing was found, other than a benign polyp on my colon. A breath test for h pylori came up negative. A series of blood tests, urine and stool samples followed, all showing up negative. I was told that my problem was acid reflux and given a prescription for Nexium. It helped slightly with my acid, but the nausea, stomach pain and weight loss continued. I went to a naturopath who sold me a lot of expensive herbal remedies for digestive problems, such as digestive enzymes. They didn't help. Sometimes my symptoms would lessen or disappear for days or weeks at a time, then suddenly reappear. Finally, after a year I found a doctor who ordered more comprehensive tests, and I tested positive for h pylori and blastocystis. My treatment for those infections is very recent; I just finished taking the triple drug prescription for h pylori, which was Metronidazole/Clarithromycin/Omeprazole. And just today, I began my three-week dose of lodoquinol for the BH. These are a list of my symptoms in full:
weight loss (30 pounds to date, and I was slim to begin with)
tingling of calves and feet
urinary difficulties (perhaps unrelated)
anxiety (one of the many doctors I saw said that I was "just suffering from anxiety" I responded that feeling sick to my stomach almost every day for a year produced the anxiety, not the other way around. He wrote me out a prescription for a tranquilizer which I promptly tore up outside of his office)
depression ( I have been so depressed at times with no hope in sight, that I have considered the possibility of suicide)
feelings of isolation (my physical state has prevented me from going out as often with friends and family, and vacationing as I used to. Life is not as much fun as it was before I began feeling sick)
Since I've just begun treatment, it's too soon to say whether or not these drugs have been effective, though from what I've read here, I'm more hopeful about h pylori being eradicated, than blastocystis.
What I can offer thus far is not a great deal, but this has helped:
Diet. A couple of weeks after I eliminated dairy, sugar and wheat/gluten from my diet, (I began my new diet 5 weeks ago) I noticed that my symptoms were not as severe. I could get through the day without thinking all the time about my physical ailments.
Meditation. I returned to meditating daily after a long hiatus. This has helped my anxiety and depression, and I find that I think less often of suicide than I did 6 months ago. In my meditation I regularly do a visualization exercise in which I imagine a white light eradicating the parasites in my body. Whether or not this will work on a physical level is unknown, but I find the idea and experience of attacking my aliens within very satisfying. It's my way of telling them daily that they're unwelcome.
Will keep you all updated,