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#21 [url]

Jun 30 13 8:20 PM

Some news, just found out via email from my gastroenterologist in Melbourne that he spent time in Sydney with CDD.com.au who perform the procedure I mentioned, he learnt their processes and now performs it in Melbourne only just up the road from my house!!!! How bloody amazing!!!!! He is an excellent dr.

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#22 [url]

Jul 2 13 6:57 PM

Here is the treatment protocol suggested for infusion:

There is a combination of three medications administered via colonoscopy infusion - - - Furazolidone 1500 mg Iodoquinol 6500 mg Paromomycin 7500 mg The combinations of these medications are dissolved in 300mls of water for irrigation. . To improve the success of your eradication treatment your doctor will also prescribe an oral treatment course of Paromomycin taken three times per day for 10 days. This treatment should begin the morning after your colonoscopy

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#25 [url]

Jul 3 13 1:52 AM

paromomycin isn't a tissue drug. It only works in the intestine. If the protozoa has invaded the tissue of your intestine or other tissue in the body you need a -dazole drug. luminal drugs like paromomycin doesn't have any effect on protozoa in the tissue, and all your time will be wasted.

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#26 [url]

Dec 3 14 6:06 PM

Hi Troyza and co

I too live in Melbourne and have been battling debilitating symptoms for 5 years.

I am wondering how your infusion treatment went with the gastroenterologist in Melbourne? I have been advised to do the same treatment to treat Df but am scared 1. Due to the conflicting information re Cahill-type protocol versus CDD and 2. Because I do not have a good history of detoxing and become very ill. 

Would love your input or a PM with details of treatment, options, progress etc.

Thank you kindly

TJ

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#27 [url]

Dec 5 14 2:55 AM

Hi tj85 - thanks for joining.  troyza is around so hopefully he answers your question if I remember correctly it was a failed treatment.  The conflict I think you are referring to would be the regimen.  There are no set standards in regards to medications and protozoa, e.g. there are many different reports of combinations used.  It really is a hit or miss thing and might require several attempts of differing combinations.  

Impaired detoxification is very common among those carrying chronic infections. You might want to read about Methylation and how this can help.  Liver toxicity is very common due to the intense activation of the immune response which attacks the liver. Increasing antixoidants will help tremendously as will intensive nutritiional support.  As a side note, I would avoid using antioxidants during antibiotic therapy. If you have any other questions, feel free to post.  

 

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#29 [url]

Aug 14 15 12:10 AM

HI all,

I appreciate that this was all a while ago now but am new to the site and doing my own research having also tried and failed with Protocols 1 & 2 and do not want to have anymore from CDD. Is anyone inteerested in helping me? If so please PM me with your details. I would need to know what you had (as the protocols change it seems as the drugs become banned for their toxicity) when you had it, ideally how much you paid and side effects. ALso if you still have DF or what worked.
I look forward to hearing from you in order to help others in the future (and hopefully ourselves in the process).
Thanks,
Claire

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#30 [url]

Feb 29 16 1:23 AM

Think I'm glad I found this site. I was Dxed with d fragilis. I have had cfs for maybe 20 years. Protocol 1 failed and still positive for df. They told me it was 83% success rate. Now trying to convince me to take it up the butt. Its a 92% chance. Not much of a difference, except for a few grand in their pockets?

Is that their system? You take it orally, then rectally, the get told you have dysbiosis?

What percentages of success vs fail for us really I'll would you guys say you have seen? I just started looking for the fails. Gotta keep it real

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#31 [url]

Feb 29 16 3:22 AM

Thanks for posting the question. Are they recommending the same drug rectally as they are orally? If so what is the drug if you don't mind sharing. 

I can tell you with some certainty that single remedy approaches seldom work which means that cocktails work better but this can be questionable as well. Different combinations seem to be the norm which means the medical community really does not have solid answers on which approach will work. I know many who end up treating themselves rather than going through the bureaucratic nightmare. If you look at the Active Topics, there is a discussion started by michael in which we discuss some of the other issues such as biofilms and resistance. These are 2 important issues that are ignored but vital in recovery in my opinion. Let us know how we can help you. 

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#32 [url]

Feb 29 16 4:18 AM

Hi lineup. Just for the record, I'm not attacking borody etc. You just become very cynical when ur as sick as some of us on here are

The butt injection is
Furazolidone
Secnidazole
Nit

The oral I took was
Secnidazole
Doxycycline

I guess the big gun must be sec?

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#33 [url]

Mar 1 16 12:01 AM

I did not read that as an attack. We have been through this incredible maze and realize that many claim to have solid answers. In reality they may be correct but only in a percentage of patients rather than implying that all are cured, I have finally gotten it through my head that medical people are business people and they try to sell us which to me means Caveat Emptor (buyer beware). We have to protect ourselves and make sure we have the right expectations about treatment options without putting our necks on the chopping block :) 

Secnidazole is a modified form of Flagyl and has fewer side effects as you know, they promoted Flagyl as the gold standard but I have not read that it is all that. Nitazoxanide is a newer drug that has a good track record. Part of the problem is finding the remedy that can eliminate them. As mentioned, the biofilm and resistance are the other 2 obstacles. 

I can outline the protocol I used (natural products) that has reduced the infection if you like.

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#35 [url]

Mar 1 16 1:34 AM

I'm glad you didn't read it as an attack. However, some may have. Sure. Tell us what work(ed) for you. Everyone and anyone. This existence can be a nightmare. I'd rather hear from sufferers that are winning than spruikers selling their crap

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#36 [url]

Mar 2 16 1:35 PM

I did many pharmas and found the Nita/Paromomycin combo worked the best but they quickly resisted against that. I addressed the biofilm issue using lactoferrin with xylitol or just lactoferrin. Lactoferrin has the ability to kill off many pathogens by itself but is known for reducing the biofilm environment. If the biofilm environment is present then it is difficult for any antimicrobial to kill the infection off. You must take precautions and go slow, I have tutorials here to help. 

The second issue is the resistance factor (if present) and with that I used goldenseal leaf (not root) and hemp oil from Nutiva. 

Antimicrobials used: Caprylic acid, neem, graviola. These should be sufficient to start off with, I can provide additional products if these are not effective. Let me know if you have more questions.

*disclaimer: Since I am not a doctor, I am unable to diagnose or treat anyone, the information provided should be considered educational and should be shared with your healthcare provider. 

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#37 [url]

Mar 2 16 3:54 PM

Yes I had the colonic infusion of 'third line' medications for DF back in Aug 2013. I had this procedure in Melbourne with Dr Froomes following CDD procedures and protocols. 
Testing 6 months later and then a year later still show no DF both via PCR and microscopy. 
I felt a little better for about 6 months but now no better and still suffering CFS and sensitivity to all and everything. 
It is a very difficult predicament. We certainly have some bug causing issues but what exactly is the question. 

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#39 [url]

Mar 4 16 3:14 AM

Almost there - will be going back on the formulas soon (took a break for a bit). I am working full time and lead a semi productive life. For many years I was fairly incapicitated which ranged from being bedridden for 20 hours per day to working a max of 20 hours per week. I incorporate  a number of other therapies (many of them detoxification) that  have helped. Happy to share if you want more details. 

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