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Oct 16 15 10:19 AM

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I'm male, late 30's and saw Dr. Cahill about 4 weeks ago.  He found charcot leyden crystals which suggested e. histolytica.  He prescribed paromomycin 3x a day (250 mg) for 10 days, 1 day break, followed by Alinia 2x a day (500 mg) for 6 days.  I finished my medication about 1 week ago - my abdominal distention is unchanged and my tiredness / fatigue / brain fog is significantly worse than before I started the medication.  I am no longer able to work, drive, etc.  I sleep even 12+ hours and nothing helps.

My medical history is the following: My abdomen started to progressively expand in June and I started to lose my appetite.  I had some pain in my abdomen but not a specific location.  By July, I was extremely distended and lost my appetite - absolutely no hunger - i lost 11 pounds.  When I was fully distended I was unable to breathe comfortably.  I started to feel very tired in July.  By August, my appetite had returned, but my distention was unchanged (even when I water fast, my distention does not go away); also, my tiredness / fatigue / brain fog continued to get worse.  In August, I was treated with Alinia for 3 days empirically by a different doctor in case it was Giardia but it did not help.  In September, I saw Dr. Cahill and started the meds (I mentioned above - paromomycin / Alinia) after seeing him.  The paromomycin felt like sleeping pills -- before starting the paromomycin, I was able to work half-days and occassionally drive, but afterwards I cannot do any of those things.  I felt the same on the Alinia and after finishing the meds continue to feel the same (i.e., tiredness / fatigue / brain fog and continued abdominal distention).

Anyone have a similar experience with paromomycin or Alinia?
Anyone feel worse after the meds were done?  Other doctors are saying that I should have already felt better if I really had amoebiasis.
Anyone know how soon I should see improvement if the meds actually worked?
Any general thoughts or suggestions for me?

Please help.  Thank you.
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linenup

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#1 [url]

Oct 18 15 11:47 PM

These parasites are strong and cause problems - specifically damage within the intestinal tract. My suspicion is that it would be too early to determine if they killed off the parasites. I would wait a little and check back with Dr. Cahill.

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#2 [url]

Oct 22 15 7:15 PM

Update

I'll continue to provide updates in case it helps anyone or if anyone else has thoughts. 

I followed up with dr. Cahill after 1 week of testament. and am clear of the Charcot Leyden crystals. 

Week 1 post treatment I felt horrible - the same as I felt prior to treatment. 

Week 2 - 1st half feeling almost as good as I did pre treatment - i.e. still pretty bad.  Though on a positive note I had half a day without brain fog. 

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linenup

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#3 [url]

Oct 23 15 11:17 PM

Thanks for updating us, this helps many and the future visitors. So maybe the drugs got them and repair may take a bit of time. Keep us posted. 

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#4 [url]

Oct 24 15 9:46 AM

Apologies - i wanted to correct what I wrote re: during week 1 - I felt the same as I did DURING treatment which was horrible. (I incorrectly wrote pre-treatment). 

Week 2 - I got back to pre-treatment which is still bad but not horrible. 

Next week I'm hoping for signs of improvement. 

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#5 [url]

Oct 31 15 12:04 PM

Week 1 - post treatment I felt horrible - the same as I felt DURING treatment.  (significant brain fog / drowsiness / fatigue; no abdominal distention change) Week 2 - I got back to pre-treatment which is still bad but no horrible.  (brain fog / drowsiness / fatigue; no abdominal distention change) Week 3 - I improved slightly but still pretty bad (brain fog / drowsiness / fatigue have periods of less bad - I am still dysfunctional; no abdominal distention change). Hope to have more updates next week.

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linenup

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#6 [url]

Nov 4 15 1:27 AM

Thanks for the update - have you talked with Dr. Cahill about this?

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#7 [url]

Nov 6 15 11:24 AM

I have spoken to him. He said average recovery time is 2 or 3 months but in some cases can be many months. Re: the brain fog / fatigue / drowsiness he said that's not necessarily typical but the symptoms are so varied that it doesn't mean anything. He's confident in his diagnosis. Other doctors believe I should already feel better by now. I welcome any thoughts / feedback. Thanks. 

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linenup

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#8 [url]

Nov 12 15 2:30 AM

I would suppose there could a variety of factors such as the type of parasite, the length of infection and so on. The immune system is still reacting based on the symptoms you posted. Dr. Cahill is a pretty good doctor so I would roll with it and see where all this goes. 

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#10 [url]

May 23 16 5:59 PM

Update

May 2016.
​Quite an ordeal and still not fully better but pretty close, though it seesms that Dr. Cahill (who I have a lot of respect for) was mistaken.  I copied and pasted a post below from LeforaGuest that discusses some of Dr. Cahill's strengths and weakness. First, let me explain what happened and where I am.  In terms of the brain fog / drowsiness / fatigue it was actually a vestibular type of issue (a type of vertigo) - and most likely PPPD (persistent perceptive postural dizziness) to be specific.  This condition is caused by vestibular neuritis which is caused by a virus.  It can be debilitating as it was for me - difficult to ambulate, overwhelmed by stimuli in grocery stores / normal situations, difficult driving / reading.  Basically the nerve is damaged and misfiring and the brain is exhausted in trying to reconcile the signals.  Diagnosing it was difficult since I had the other GI symptoms of constant abdominal distention.  I starting noting improving month over month around December or so.  I did not figure out that it was PPPD until April by which time I was much better but still not back to normal.  I started vestibular physical therapy which can help speed the brain re-learn how to interpret the signals has been helping and eventually will be back to normal. Regarding the GI symptoms, as a reminder I had increasing distention over a 3 week period or so - chronic distention that did not go away on fasting or anything else - followed by inability to fit food for 4 weeks - I was able to start eating slowly after.  In hindsight it seems like that was also caused by nerve damage cause by a virus.  It's possible it was a parasite, which led to the virus and / or nerve damage, but seems more likely that it was just the virus.  The abdomen is still distended but not as much as it was before.  The belief is that it will go away in the coming months and be back to normal. In terms of the charcot leyden crystals unfortunately there is a significant rise of eosiniphilic cases which I believe Dr. Cahill has not been following.  ​If you google eosiniphilic esophagitis epidemic you will see the rising statistics for this condition.  I do have eosiniphilic esophagitis as I found out in subsequent testing but that is an incidental finding and has nothing do to with anything else I've experienced.  It is possible that the charcot leyden crystals (which are denatured eosiniphils) that Dr. Cahill found was from that condition and not the EH he was guessing. I took the full course of meds that Dr. Cahill prescribed.  I also took flagyl 250 mg 4x a day for 10 days later and that did nothing as well.  I think if Dr. Cahill finds a parasite, then he found it.  If he found charcot leyden crystals and is guessing EH, try the course of meds he prescribes or a higher dose.  If you feel better, maybe it was EH, or maybe it was some other parasite or infection that got killed off, but who cares what it was since you are better.  But if you do not feel better within weeks, then strongly strongly consider the possibily (and in my opinion a very high likelihood) that it is something else (e.g., another type of parasite, or infection, or illness). I wish everyone the best and hope that your suffering ends shortly. _________________________________________________________________________________


I am copying and pasting the post below from Leforaguest that was posted Feb 2013.

Dr. Cahill's Strengths and Weakness: if you are still not well, after seeing him, what to do._________________
Hey, this is Shrimpy from CUREZONE: I posted this on that forum; and as per Brian's suggestion, I am copying my post from there; hope this is helpful to Cahill's patients. =mediumI thought I would answer a question that many people have asked me; and write this brief note because there are still some desperate people on this forum and PTTU forum specially (http://pptu.lefora.com/2013/02/07/my-e-histolytica-dr-cahill-sotry/#post1): They are specially Dr. Cahill’s patients, who are still not better, trying this probiotic and this, thinking they will get better, even after months of seeing him.     The only two people who have gotten better with Cahill are briboy and myself, as far as I can tell. I will try to explain why I think this MAY be:=medium    I want to say that I have the highest regard for Dr. Cahill; he is one of the best: I am one of the first to recommend this doctor very highly; And I got my diagnosis of EH just a more than a year and got my life back; and then I got the message to Briboy; who also took the proper dosage and got cured. We saw results immediately, within weeks. Our lives changed. But I DID NOT TAKE Cahill’s DOSAGE; and I took a comprehensive treatment, given by another brilliant doctor, which included not just TINIDAZOLE AND PAROMO; but a series of other meds; SO I cannot say with certainty what cured me; particularly given my varying symptoms, including itching all over and hives, and muscle spasms, and twiklings, apart from horrible stool and severe colon pain; and fatigue.

=medium    But ALL I WAT WHAT TO SAY is: yes Cahill is good at finding SOME parasites, specially Eh; but he cannot find them all; and this quite bad on his part; not because he does not find other parasites; he does find occasionally such things as Trichuria, etc. What is specially worrisome about Cahill is that when the patients takes the meds he recommends and goes back to him, and he cannot find EH, he does not bother to suspect that one may have other parasites, which are simply not dateable in either in stool or stool mucus samples, which he examines; this is his horrible weakness on Cahill’s part. He does not treat patients COMPREHESIVLEY. Also note many people who have EH do not have the horrible symptoms I had; or some people have different symptoms given how INVASIVE eh is in each person. I know for sure that I had invasive Eh. And had possibly another prasite like “cryptic giardia.” But many people who go to Cahill do not get better: and many have asked why: =mediumI have a couple of Answers: =mediumMy First Answer:
=mediumSome people take the very small baby dosage that Cahill gives for something like Eh and they do not feel well still after taking it. But when they go back to Cahill with the same symptoms, he cannot find anything; I asked Cahill if it is possible that he cannot find Eh in most people because Eh has become invasive in some people; Cahill said YES. He admitted this to me: So clearly his baby dosage of Paromo 250 does not work; and Doxy is a Joke, as the doctor who cured me said. Doxy is the wrong tissue drug. So if you have not taken the high dosage, combined with Tinidazole and Paromo, you are still unwell, this means you still have Eh. but Cahill cannot find. So you need to take the higher dosage for Eh.But some people do get better with Cahill’s dosage? Why you may ask? (Richard Behar is an example. He took only 250 Parmo. He is completely well after 5 years of taking the meds.)=mediumSecond answer is:

=mediumThis is Perhaps because they ONLY had EH; and perhaps Eh is easier to eradicate; because they only had Eh. Then Why others who have taken at least 750 Paromo are not better. There are at least two people on this forum who took 750 Paromo and did not get better. =mediumWhy you may ask?

=mediumThird Answer: 

=mediumThey do not get better, because they have SOME other parasite that Cahill cannot find. So here one has to take the COMPREHESIVE series of drugs…. And I would advice for people at this stage to go to an infectious disease specialist and do antibody testing for things like Strongyloides and Toxoara, Trichanelia, Shistosomias, etc. And they require different drugs and different durations of therapy.So my simple advice: if you are still not better, after going to Cahill; consider these possibilities.

=medium 
=mediumOne thing for sure: if you took the drugs, and you had a parasite or parasites, and the drugs killed them; IT WILL NOT TAKE MONTHS for you to see results; within weeks, your gut will respond, and you will have perfect stool. And you WILL CONTINUE TO get better. AND still one must then take probiotics to continue the healing of the gut, which takes time; But one must have perfect stool and must have energy within weeks …..If you are not well, you need to press Cahill on this; and ask why he does not consider other options. The blood test he does not really look for antibodies for other parasites that cannot be found in stool. But I would highly recommend that you not take Cahill’s baby dosage for any parasite; they are not likely work. But I would recommend you got to Cahill, if you have never been to him; but know his weakness as well. No doctor is perfect. But there are good ones, who will treat you EMPIRICALLY. Find one of those. Cahill is not one of those doctors. More later. =mediumfrom: http://curezone.com/forums/fm.asp?i=2033828#i

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linenup

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#11 [url]

May 25 16 12:02 PM

Thanks for updating, keep us posted. 

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