Have had confirmed Dientamoeba Fragilis for over a year now. Tried Metronidazole first then the 1st & 2nd line with the Centre for Digestive Diseases in Sydney. I was terribly ill with the toxicity of the 2nd line, i can only assume with the furazolidone which requires a low/no tyramine diet due to the side effects including headaches, dizzyness, flushing, joint pain etc. the other drugs being Nitazoxanide and Secnidazole.
I know the 3rd line is an infusion but don't live in Sydney and don't want to spend the money that it would cost to bring my whole family over (2 young children) cost of flights,accomm and over $2,000 treatment that i am still skeptical about. Seeing a private gastro next week for endoscopy/colonoscopy to check for underlying issues but whose team doesn't support the protocols and wouldn't enter into giving the infusion during this procedure (although CDD nurse said they would support the Dr in administering this.
My husband and 1 child has tested positive but are asymptomatic - not asking my other child as she is young and i will assume she also has it.
So... has anyone out there been successfully cured of confirmed DF using the infusion and what are others experiences please?
My husbands GP prescribed Tinidazole as a single dose and he is now my guinea pig trying other regimens where mine has failed.
Everything i have said says treat the whole family but if they haven't worked for me then i am not wanting my children to have any drugs unless either myself or husband have proven they have worked.
Your ideas/experiences much appreciated.
Thanks in advance.
Last Edited By: claire Aug 5 15 12:52 AM. Edited 1 time